Hi, I am Brazilian person who lives in Australia. I was diagnosed with MS in June 2012.
Although the diagnosis happened only during this year, I found out that I have this condition since around year 2000 and I do remember losing the sense of temperature on the toes and some tingling under toes at that time. Nothing was detected and they all said it was due to a high level of stress at work and everything went normal afterwards.
My second relapse happened ten years later, in 2010 when my leg went weak and I had a foot drop. Again, they said this was associated to a pinch on the nerve but after 2 years of physiotherapy with the leg not only still weak but jumping involuntarily. It was then time to see a neurologist here in Australia, where I live.
After the sad diagnosis, I think all that you do after being told is to look immediately at the internet for a cure and written in every possible language, even though the doctors say that there is no cure and advise that we are not to look at the internet.
But we all do that and we all find lots of fads with experiments that worked for one person or another. We can give it a go to see if things improve, I don’t understand why some doctors would not want us to check if there is anything out there at the internet that could possibly help us.
But apart from these MS threads I really found the cure! I found a video from a Brazilian journalist that used to have MS. As his symptoms and relapses had disappeared from his body, and even some lesions had also disappeared from his MRI after starting a treatment with his neurologist, he had decided to produce a video in Portuguese (my language as I am also Brazilian) with other testimonials from successful patients in order to promote this effective treatment to a great number of patients.
Here is the link to the youtube video. The subtitle is in English. https://www.youtube.com/watch?v=erAgu1XcY-U
My husband, who is a chemist, saw a bit of this video and did not believe much in the treatment, even though the treatment has been administered since 2003 by a serious neurologist, professor from the Federal University of Sao Paulo, Brazil and additionally he is also a researcher.
When I searched for this doctor to see his contact details at the online yellow the pages came up with his phone/address and several 5 star ratings with testimonials from patients saying “thank you for giving my life back”, or “I now can walk again”, “my daughter is rid of the wheel chair, thank you”.
I was determined to see this doctor, specially because we already had plane tickets to go to Brazil to see my family that is based in the same city as this renowned professor! His appointments can go from 2 to 4 hours. The appointment that was to start at 8pm was delayed. It started at 10pm and ended at 1am.
The doctor looked firstly at the MRI images and mentioned that my lesions were at least 10 years old. This matched to my first relapse, and I hadn’t even started talking about the relapses.
He explained that the Vitamin D is an actual hormone and not a vitamin, with ability to fully repair our neurological systems and that people with auto immune disorders do not retain this important hormone in their bodies. We are all Vitamin D deficient. We can expose ourselves to daily sun to for 10 minutes to produce 10,000 IU of vitamin d, but for patients like us, we need higher doses as most of it will go down the drain and we need to retain a good amount of it to reconstruct our neurological system.
The professor explained how the vitamin D works in our bodies and even showed us all the existing evidences from scientific websites that confirms the strength of the treatment.
I wanted to cry when he said that my situation could be easily fixed and he did the whole assessment explaining also how I could do the treatment from overseas. From overseas, you do need a General Practioner or another specialist on your side for frequent monitoring of vitamin D levels as well as Calcium levels (at 2 months of treatment, 4 months, 6 months and 12 months). We are going to able to send our tests results via email to this Brazilian neurologist for his final analysis and adjustments on the treatment.
I am to return to Brazil in a year’s time and I was told by him that it is expected that my new MRI shows less lesions than my previous MRI. He said that given the number of lesions that I carry plus their age, it will take me around 5 years to clear my body completely from all lesions and to erase permanently any history of auto immune disorders in my body.
This professor had also shown us MRI images from his previous patients and we could see that some lesions did disappear within a year. My husband and I had no doubts that the treatment really works.
When it finished, my husband was suddenly convinced about the treatment effectiveness, he understood that the Vitamin D is an actual hormone and not a vitamin, with a powerful capacity of recovering the neurological system. He even wanted to cancel our health insurance with hospital cover, which I asked him not to just yet.
As vitamin D absorbs a lot of the Calcium intake, those who take very high doses of vitamin D like me are to refrain from ingesting any dairy product (sad part) as Calcium retained in excess can cause irreversible kidney problems.
2 Months On – October 2012
In this space I want to give you an update of my progress with Vitamin D to treat MS.
In Australia I have a great GP monitoring my Calcium levels every 2 months. Please do never start taking higher doses of Vitamin D on your own. If not taken with due precautions, doses higher than 10,000 units (IU) may cause irreversible damage to the kidneys, among other complications.
My dosage of Vitamin D was determined by this Brazilian neurologist who calculated somehow the number of units that I was to take. He firmly declared that if I was to follow this treatment, I would have to stop immediately having any sort of dairy intake. No soy or rice milk enriched with Calcium either. It sounded like a terrible thing, but I prefer this diet rather than any aggressive treatment that is currently available which does not even cure anyone.
And I found that Oat Milk as well as Almond Milk are good milk substitutes that allow me to have some muesli in the morning and to bake cakes. I replaced butter with shortening for preparation of icing mixtures.
It is really not too bad.
How do I feel?
I have a lot of energy now. Before starting the treatment I would be really exhausted after an hour walking in the shopping or in the end of the day. Right now I keep going and I am loving this sudden energy gain. And I used to have a lot of pain in the calf when stretching my legs at bed time. The calf aches are history, no more painful legs.
I still have a light tingling sensation under my right foot and right leg. The right leg is still weaker with the foot drop that eventually shows up after half an hour walking. It is a bit early for big transformations but I am looking forward to letting you know what will happen in 4 months.
I hope other doctors around the world start following this treatment. They can contact this doctor as he already has other followers in Brazil and Portugal. It is cheap, effective and it cures. This Brazilian doctor is keen to pass any necessary information to other physicians around the world. He is a speaker in many international conferences and I want to thank him so much for his great sense of altruism and for working tirelessly just to give back our lives. This website is not to promote his medical services, but to promote awareness that there is cure for MS and other auto immune disorders. This particular neurologist is booked until July 2013 anyway. I wanted to translate testimonials of ex-patients that have treated with vitamin D and hopefully we can get more doctors around the world to join this cheap and simple solution.
4 months on – December 2012
This is my 4th month since I started the treatment, I have great news! I used to have some incontinence, usually I could hold my bladder for 30 minutes. I did a train trip of 3 hours and was able to hold just fine! I have to drink 2,5L of water as part of my diet, but I am able to hold for a few hours if needed. I no longer go to toilet every 30 minutes as before. The incontinence is totally gone!
8 months on – April 2013
My local neurologist insisted that I take Tysabri, a very aggressive drug to treat MS. I asked them to show the results of my treatment and they requested a MRI.
12 months one – August 2013
Great news! I have been back to Dr Cicero, he analysed my 8th month MRI and another one done at the 12th month before I went to Brazil. In both of them, a lesion had disappeared from my cervical spine! The images were compared to the first MRI at the diagnosis time.
I still have a very light tingling on hand and feet. My right leg is still weak, I don’t do much physiotherapy exercises as I should, perhaps that is why.
I am living a normal life, following a restrict diet with no milk or any sort of dairy, but feeling normal apart from my weaker leg. I walk normal, but it feels weak.
18 months on – February 2014
Many people write to me asking me how I feel. Sorry for the disappearance. I am living a normal life. Do not remember I have MS, but still have a weak leg. Dr Cicero has been in all sorts of media, TV, radio, online chat. His patients are the ones organizing all of these things, in order to make his protocol known. There are several materials about his protocol, all in Portuguese, which is a shame. That is why I have this blog, to try to get this protocol known around the world. Lots of Brazilian doctors are now following his protocol, all updated in my page.
I know Dr Cicero is booked out and does not see new patients, but hopefully your doctor contacts him and gets the information to follow this simple and apparently effective protocol in your country!
20 months on – April – 2014
The same situation here, but I have started doing physiotherapy again. This will be my third physiotherapist. Hope things improve with my weak leg.
There is a new video out from Dr Cicero, about his protocol, how he stated this over 10 years ago and the research involved in this treatment. Have a look, it has English subtitle! https://www.youtube.com/watch?v=hOfO29rL-gI#t=119
24 months on – August 2014
Friends, I have great news!
My leg is getting stronger and stronger! I think this physiotherapist is pretty good and I suspect Vitamin D is making me stronger each day! I am also organizing a MRI to compare and check if any improvements happened, I am looking forward to seeing the images! (I hate the MRI though)
Many people ask what is the diet involved, what is the safe dosage of vitamin D. The protocol requires 2,5l of water (or other liquids) daily. Alcohol in a very very moderate fashion. Not much red meat, if possible, none. Lots of dark green leaves to keep the immune system strong. No dairy, no dairy products. Can we eat cake or biscuits? Yes, that is accepted. But no cheese cakes, no condensed milk or buttery things. No cream cheese, or any milk cream. No milk chocolate, although dark chocolate is alright. No alternative milks enriched with Calcium.
The safe dosage of vitamin d that DOES NOT require any diet, and makes a difference in your health is 10,000 IU. Why 10,000? Because that is the amount produced by the sun itself! A person with arms and legs exposed to the sun for 15 minutes will produce 10,000 IU.
Why do patients with autoimmune disorders need higher doses than 10,000IU?
As explained by Dr Cicero, we patients do not have the ability to retain the vitamin D that we get from food and the sun. All of the vitamin D we have in our body goes literally down the drain, which makes us weaker, and causes all sorts of autoimmune disorders. That is why we need a daily higher dose of vitamin D to be able to top up, knowing that part of it is going away from the system, but having so much still left that can adjust our system.
People with autoimmune disorders should be aware that this is a genetic predisposition. Which means, our children need to receive vitamin D, be it exposed to the sun or getting some additional vitamin D. My daughter takes 3,000 IU daily. She barely gets sick. Dr Cicero explained that children should take 1,000 IU for each 5KG, so my daughter, being under 20Kg, is taking 3,000 IU. Once she reaches 20Kg, she will upgrade to 4,000 IU.
My husband is taking 10,000 IU daily, recommended by Dr Cicero. He needs no diet at all. It is good and safe for him, as he does not have the opportunity to be exposed to the sun.
25 months on – September 2014
I just came back to celebrate these news with you. My leg is now 100% normal! It has been like that for 2 weeks now. I will never stop the physio exercises, I don’t know if I stop, perhaps the weakness comes back. I just want to keep my normal leg forever! My physio gave me harder exercises now, I think I am lucky with this physiotherapist, but I read that vit D also helps developing muscles.
And the second great news is that the MRI – imaging company – requested my previous MRI and made the comparison here in Australia. The verdict is that the lesions at the cervical spine have all reduced in size! I am hoping so much that they disappear completely next year! The lesions in the brain are the same in size but there is no increase or new lesion anywhere.
I am so happy with these news. In 2 weeks time I will be back to see Dr Cicero, he will also make his analysis. I can wait to be in this appointment.
I will be back in October now with news or earlier if I have the chance to write again after the appointment.
October – 2014
Hi Everyone, I have great news! I have seen Dr Cicero in the end of September. He looked at the MRI comparison done in Australia to confirm that the lesions have been reduced in size! He did all the assessments to check my balance and coordination and I passed the test! He said I am discharged from his clinic. This means I no longer need to return every year to his clinic. This was my third and last appointment. I will have to continue taking 40,000 IU of Vitamin D, but I am no longer required to see him.
Although he mentioned that I could return 2 years later just to make sure everything is in order as expected, so this will be in 2016.
I think this is really great news, I only have reasons to celebrate. I had a great time in Brazil, where I visited my family and friends and I feel perfectly normal!
Hope other doctors around the world follow Dr Cicero’s protocol, so they can save a lot of other patients and give them a normal life.
Hope to be back with more news soon!
I have just heard from a friend who lives in Italy, she mentioned that there are 2 new Italian doctors that have been trained by Dr Cicero, so they are following the protocol. Have a look at the page with Doctors that follow the protocol.
By the way, here is the link from my friend, who translated many articles from Portuguese to Italian, as well as videos. If you speak Italian, here it is:
Hi again, hope you all had a great Christmas. It has been a very busy period. And this is the period where the food with lots of dairy come up and represent a bit of a challenge.
Replacing dairy in the end of the year
It is not as difficult as one could think. Most of cakes can be prepared with water instead of milk.
Milk cream and condensed milk can be replaced by coconut cream or coconut milk.
Rice milk, soy milk, macadamia milk, oat milk, almond milk (if they do not have any added calcium) can replace milk. In Australia I only found almond milk and macadamia milk as options without any added calcium. Everything else seems to have the need to have calcium added, aargh…
Ice cream can be replaced by sorbet (made without milk) or Popsicle/icicles.
Anyway, I prepared lots of dessert with lots of dairy ingredients for my family, I could not eat them, but I am used not to, so it was fine really, as the most important is to be healthy, isn’t it? I rather do a diet than go to hospital to receive aggressive injections that will knock me down, and knock my system down.
I am very happy to take only vitamins to erase the MS lesions and have a normal life apart from the diet. It is not that difficult, it is a matter of getting used to it.
Wish you all a great and healthy 2015!
Hi everyone, many people just ask how I am going, if I had any relapses or any symptoms taking so many units of vitamin D.So far I am still living a normal life, no relapses since I started the treatment in September 2012. I still have some numbness when the weather is too hot, but all tolerant and due to the hot weather in Australia.
Have a look at the videos page, I added a new one with more explanation from Dr Cicero, with English subtitles. In this occasion, he is at the House Chamber, explaining to House representatives how the vitamin D improves patients lives. This is a 15min video.
For me, the most complete video explaining his protocol is the one from March 2014. If you have not seen it, reserve 1:30h to see it, it has all information about his treatment.
I have posted some new videos and some good news too, we have a Dr in Canada! Please go to page “Doctors who administrate higher doses of vitamin D” to check her details.
Talk to you soon
Wow, it has been a whole year since I last updated my page. Sorry about that. The truth is, that I live a normal life. Only in the end of the year I remembered to monitor my condition to check the levels of calcium in the body. It is all normal as usual. When we stick to a no dairy diet, the results usually tend to be the same.
We had good news this year. More international doctors are following this protocol and now we have one in USA, one in Canada, one in Spain (last year we had new ones from Italy and Peru). It is slowly increasing the list of doctors willing to help patients have a life free from this condition.
I wish you all a Merry Christmas and a Happy 2016!
Hello again, I have been enjoying a normal life, have answered to a lot of emails and recommended doctors that work with this protocol.
Dr Sanja in Canada sees patients via Skype appointment.
Now we also have a doctor in US, Florida, which is great (please see list on Doctors that work with the protocol).
And more people have been publish more information about Vitamin D and its benefits:
I have just heard from a colleague that there is a book out there from one of the patients from Dr Cicero Coimbra, available on Amazon, where she talks about her condition and her life change with vitamin D.
I would like to post a great link to a Facebook page in English, with testimonials from Dr Coimbra’s patients, who are using higher doses of Vitamin D. Here you can check information and clarify your doubts about the treatment:
March 2016 – My appointment with Dr Coimbra (written in June 2016)
I finally made time to post what happened during my visit to Brazil, when I saw Dr Coimbra.
This appointment also had 2 other neurologists from South Brazil, training to be able to administer the vitamin D protocol.
I receive many emails asking what my tests results are. They have been quite constant, not much variable.
Dr Coimbra said my tests results were all ok, except bone density, which I will let you know just below these results:
My PTH was 10 ng/L (it will be always lower when you take higher doses of vit D and it should be at least above 0 or 1). Since 2012, my levels have been between 7 – 13.
My Vitamin D3 level was ++ > 375 nmol/L (which corresponds to + 150 ng/L. (in Australia, they can only ready up to 380 nmol/L. They described my levels with ++375>, unfortunately they cannot give me the exact amount. One day, labs will be used to higher doses of vitamin D and this issue will be part of the past.
Calcium in the urine (24hrs) = 4.4 mmol/24 h (the lab interval is 0.0 – 7.5, but Dr Coimbra calculated that the limit for those who are doing this protocol is actually 6,25 mmol/24h, which corresponds to 250mg).
There are other tests, but the ones above are the main ones. (they are Vit B12, Creatinine, Urea, ionized calcium, Ferritin, Albumin, Seric chromium and Seric phosphate. There is also bone density, to be done every 2 years to check if lack of calcium is affecting the bone.
My bone density result was lower than the previous one, done 2 years earlier. It is purely my fault During my last appointment, Dr Coimbra instructed me to walk 30 min daily for bone health. I wrote that down on my notebook, and thought I have been covering this when I walk 15 min to school each way, 4 times a day. Now the result of bone density came out and it looked downhill.
Dr Coimbra told me off, he said I was meant to exercise 30 min non-stop, really fast, pushing harder, as real exercise, until I puff, either running or walking super fast. I looked at my notes, which had only “walk 30 min” and not futher details. Ok, I gotcha. He made me promise to exercise daily and have no excuses but taking the dog with me for a faster walk to school, returning home after 30 min power walk. I really hope this changes the results in 2 years time, when I see him again.
By the way, I thought I would not have to see Dr Coimbra anymore, back in 2014. That is because I have seen him in 2012 at the time of diagnosis, 2013 and 2014, when he told me I no longer needed to return to his clinic, except in 2 years just to check how things are going. Now I have returned in 2016, and it seems that I have to go back in 2018 again. Oh, well.
IMPORTANT UPDATE ON DIET:
Dr Coimbra gave me an updated list of what should be avoided during the protocol.
Just copying his text:
The treatment requires a low calcium diet free of milk and dairy products, to prevent excessive absorption of calcium from intestinal contents, and the minimal daily hydration of 2.5 L of liquids (water, juice, tea, soft drinks, etc.) in order to provide urinary calcium dilution.
Patients should not drink calcium enriched foods/beverages like soya milk, rice milk, oats milk, almond milk, coconut milk, any natural source that includes calcium in it.
Patients should not eat nuts (peanuts, almonds, chestnuts, cashew, granola, pistachio , hazelnuts, etc, as these contain high levels of calcium. They have to avoid hommus (sesame seeds), babaganoush, sardines and anchovies with bones.
Also avoid excessive intake of bananas, star fruit and açaí.
What we can eat: Food that contain milk in its preparation (mash potato, bread, cakes, biscuits, etc.). It is recommended that patients eat fish, egg, veggies, raw dark leaves, egg white, tofu, as often as possible.
I have been asked which milk I drink in Australia, and I was buying almond milk for a couple of years, as it was the only natural kind of milk without calcium added. I did show Dr Coimbra that it had only 2% of almonds diluted in water and Dr Coimbra did not see this as a big deal, since my calcium levels are really low.
Recently I found a product called Coconut Quench, that does not contain any calcium and it tastes better than the almond milk. I replaced the almond milk with that.
Another popular question that comes in my inbox all the time, is if I still take 40,000 IU daily and where I buy my vitamins from.
Yes, my dosage has not changed, if has been like that since 2012. I was surprise when Dr Coimbra told me this time that I was the patient with the lowest amount prescribed. All his patients, except myself, are taking minimum of 50,000 and above that.
Initially I was buying vitamin D3 drops, but the bottle was small and the price was high. Then my local doctor requested a formulation with D3 that could be prepared by a compound chemist/pharmacy, but again, that was very expensive.
Then I decided to use the same online supplier that Brazilian patients were using, iherb.com . Even though this vitamin distributor is in USA, they deliver quite fast in Australia, (like in 4 days) and they have capsules of 10,000 IU, so I only need to take 4 of them daily. They have a range of brands there, as they are only distributors, not manufacture. I buy the Health Origins brand, that comes with 360 softgels, enough for 3 months. So an order with 4 bottles is all that I need to cover the year. I also buy DHA 500, B2 and B12, as recommended by Dr Coimbra.
Each patient needs a different dosage of Vit D and different supplements. Dr Coimbra said that the most important one is the vit D, which adjusts over 200 functions in the body. The other supplements, if not affordable, can be left out, as they are like supporting actors in this effective treatment.
Hope this update was useful, I am really keen to hear from you about your improvements and if you managed to see any of the trained doctors around the world. Dr Coimbra trains doctors for free. They will be by his side, seeing patients, for 3 days. If you know anyone interested, please send me an email and I will give you the contact details of the clinic.
HAPPY NEW YEAR!!
Hope you guys are doing well. I did not realize it had been a year since I posted last time, until someone wrote to me to check if I was still alive, lol. I appreciate their concern.
The truth is that I have been living a normal and busy life, and I didn`t think there were so many people reading this blog, so I thought no one was expecting an update (even though I do receive emails all the time thanking me for sharing the information that would change their lives, just as it changed mine, I still have the impression the site is not so popular).
So thanks for reading and for asking me to update this blog.
This time I do have news though!
One of the readers from Germany convinced her local doctor (GP) to follow this protocol.
In a matter of few months, the patient was feeling so well that the doctor was intrigued and wanted to do a training with Dr Coimbra in Brazil. The patient feeling grateful, created a facebook page with all this info in German, and they now have 2.800 members at https://www.facebook.com/groups/vitamindundmscoimbraprotokoll/. Some members also convinced their doctors and as we speak Dr Coimbra is training around 6 German doctors!
I am really happy to spread the word and see the vitamin Dprotocol being adopted in other countries. I hope it helps more people getting back their lives. The newly trained doctors will be trying to get the vitamin D protocol officially approved in Germany, so all doctors should be familiar with it after the approval.
There is another gentleman trying to get the same kind of approval in Norway. After his son cured his Chron`s disease taking only 5,000 IU of vitamin D (this is actually low dose, by the way), the father is now applying to an institution to recognize the importance of the vitamin D protocol (which is the higher dose of vitamin D protocol, above 10,000 IU and that requires a diet).
Soon I will be able to share the contact details of the new doctors in Germany and tell you how the applications are going in other countries.
When people write to me to say they wish they had a doctor in their country, I usually reply saying that they can schedule a skype call with the trained doctors overseas and mentioned 2 or 3 doctors.
Recently a person asked me how it is possible that I know the doctors and why I was recommending then and how much they charged.
I explained that I don`t know the doctors, I only know what people tell me. I received emails from readers saying that they scheduled a skype appointment with Dr Calvo in Spain, Dr Sanja in Canada and Dr Giordo in Italy. I don`t know how much they charge. I get the list of trained doctors from a blog in Brazil, that belongs to Daniel Cunha. Daniel is a journalist who cured his MS with this protocol, then he made a video in 2012 and a blog. The video is the one that I saw in 2012 after my diagnosis. I contacted Daniel to ask about the protocol and he reassured me I was going to feel better. I was feeling desperate, I was feeling like I was falling from the top of a mountain, and his words were that little patch of grass or little branch that you grab when your falling, then I felt like I was holding tight to his words just like I would hold tight one of these branches.
And he was right. I am feeling normal. All is gone. I don`t remember the condition, I have a busy life and the only think I do is take my 40K of vitamin D daily, follow the required diet and do my daily leg exercises (if I stop the exercises recommended by my physiotherapist for 3-4 weeks my leg will go weaker). So I do my exercises at home, it takes me 15min and if feels like it is my gym time.
Now I see Dr Coimbra every couple of years, so I will see him again in 2018. If you have any questions that you wish to ask him, you can send me, and I will ask him personally in 2018 (probably in September). It will take a little long until then, but every time I see him I have questions from readers and I will be happy to take your question to Brazil.
I will be back here as soon as get more news. By March 2017 a lot will have happened, so see you then!
Hello, I am back, after realizing that I have not written anything in 2017
Here is a bit of what happened in the meantime. There are new doctors treating with the Vit D protocol, please see the updated page, I have visited an Australian neurologist after 4 years of my diagnosis and there is an update from Dr Coimbra.
Regarding my visit to the PA Hospital in August 2017, this was absolutely shocking. I had initially been diagnosed by Dr Brown in 2012. She saw me again in 2013 and after I had revealed that I was not going to follow their traditional treatment with Tysabri, the doctor stopped seeing me.
No problem, I have been seeing Dr Coimbra every 2 years, always with a new MRI that indicates reduction of my lesions and disappearance of tiny others. So after 4 years I was surprise that the neurologist wanted to see me again.
I arrived on time, waited for one hour and Dr Brown finally saw me. She was polite, but not friendly at all. I showed her my latest MRI results indicating improvements, and as this was a private company, and showed improvements, she wanted me to make a new MRI in 2018 at the hospital. No problem.
Then I handed her a letter from Dr Coimbra, that he wrote back in 2013. I had not seen her during all these years,so only now in 2017 she read it. Here is a copy:
While she read it, she started to laugh out loud, like a lunatic, saying “how can he know?”, “oh, he is so confident, sorry…” I responded that I understand that, and that he is passionate about his research. Anyhow, what she did was quite offensive.
To tell you the truth, if I am doing well, improving, without the hospital`s help, I personally don`t need to see these rude people. This doctor seems to not want us patients to improve. She could have gone like some other doctors around the world: “wow, your improvements can be noted” or “wow, look at the results of this MRI, how interesting…”
However, she chose to be more like a 100% skeptic. Regardless of that, I am doing well without their support. So now it has been requested that I do a new MRI with them, and that I go back to the hospital every now and then. I question myself if I really need to go there, expose myself to their cold, rude manners. I don`t need them, but do I perhaps need to keep going to show them that the research really works? Should I insist?
I decided I will return to the hospital, and if I need to see them again, I will request a different doctor. This Dr Brown I am not seeing for sure. If it has to be her, than I will not show up after my MRI…
With Dr Coimbra`s ongoing research, there is an important update regarding Magnesium intake. Here is what he published:
“Since February 2017 we are trying to reach 800 to 1,200 mg of elemental magnesium (depending on body weight) per day divided into 4 doses. Please remember that we were already using 400 mg per day divided into 4 doses. So, if you decide to use magnesium citrate (for instance) remember that only 18% of magnesium citrate corresponds to elemental magnesium. Extra magnesium is given one hour before meals and at bed time to avoid diarrhea. Doses should be decreased if diarrhea does occur in spite of that.
1) It provides much better emotional control;
2) It fights osteoporosis;
3) Magnesium is required as co-factor for vitamin D hydroxylases;
4) Correction of magnesium deficiency provides powerful anti-inflammatory effect.
5) Higher doses of magnesium compensates for urinary loss of magnesium induced by high doses of vitamin D (probably because vitamin D favors calcium reabsorption from glomerular filtrate – calcium competes with magnesium and magnesium is lost in urine);
6) It provides higher level of safety: magnesium antagonizes calcium at several levels (including at the level of intestinal absorption);
7) 80% of occidental population is magnesium deficient;
In addition, patients should never take proton pump inhibitors or soft drinks of cola.
Perianal area should be washed with antiseptic soaps after each bowel movement. In patients with history of retention type of neurogenic bladder or history of recurrent urinary tract infection, an antibiotic ointment should be applied topically after washing the same area, and reapplied after bath. Probiotics should be taken 1 hour before breakfast to change intestinal microbiota into a healthier one. That effectively prevents urinary tract infections. Pyelonephritis is currently our main cause of hypercalcemia in our patients.”
Hi everyone, I just stopped by to give a few updates.
We have a wonderful testimonial from Christina who lives in Germany. She saw this blog last year and with the help of her GP, she started taking higher doses of vitamin D. Her improvements were so outstanding, that her GP wanted to go to Brazil to train with Dr Coimbra.
After that, Christina founded a German Facebook group for vitamin D patients, and many other members started to convince their doctors to go to Brazil to train with Dr Coimbra (training is for free).
You will see in the end of her testimonial (where she provided her brain and neck images), that even her neurologist who was somewhat skeptic, ended up approving the vitamin D protocol. Have a look at her story here. She also created this great website in English with more testimonials, which, by the way, are all recent stories.
I finally updated the list of international doctors that follow the vitamin D protocol.
Some people wrote to me to ask me which brand of magnesium I am taking. Before Dr Coimbra published his statement about Magnesium intake in October 2017 (just above), I was just taking any kind of Magnesium. Whatever cheaper option I would find at the chemist.
After his publication, I have asked for some guidance from the coordinator of the blog for Brazilian patients. They were buying Magnesium tablets from iherb, and this is how the product looks like.
I have ordered it, and I have been taking it now. Instead of taking 2 tablets 4 times a day, I am taking 1 tablet 4 times, being cautions about the diarrhea side effect. I will be gradually increasing the dosage, including one at a time, until I am able to take 8 tablets per day.
Since it is December already, let me take the opportunity to wish you all a great Christmas, and a New Year filled with health improvements, success, love and prosperity.
Hi everyone, hope you are having a great year so far!
My last post was back in October 17, and I don’t really have much news, apart from that I did my yearly check up in March (blood and urine tests) to check how my calcium levels were going (they are meant to be low) and the results were still okay, except that I was a tad bit higher in calcium.
However, this was due to the fact that for a couple of weeks I had stopped taking higher doses of vitamin D to be able to add some dairy to my diet, in order to recover my bone density.
My bone density was getting really low and after talking to some other patients and hearing that some of them had to do that at some stage, I thought I would do a test. This meant that I had to reduce the amount of vitamin D to 10K (which is the normal dosage for anyone) for a few days while taking some dairy. So I understand why the results were slightely higher. If I had to do the tests again, the calcium should be back to a lower level again, since after a couple of weeks I have restared taking higher doses of vitamin D and stopped taking any dairy.
Since I am also taking a Magnesium supplement and doing exercises, I expect my bone density to be recovered. I will only do the tests in the end of the year. I have a MRI scheduled for June, so I guess I will be back around this time to give a feedback about the MRI results.
I have been receiving emails from people with a foot drop that were asking about the physio exercises that I do that help preventing foot drop or leg fatigue.
My foot drop is long gone after I started these exercises some years ago, but I still do my physio exercises as I can see that if I stop, my leg can get thinner than the other, and eventually it could get weaker, so it is best to keep exercising those muscles.
I have produced a home made video with the leg exercises, if you wish to have a look, I can send it via wetransfer, just send me your email and I will send it to you. Unfortunately my home made video is too heavy to upload here.
Apart from that, my physio is black belt in Karate and this week I am starting karate classes along with my child. This should be an interesting work out!
There is a recent youtube video from Dr Coimbra talking in an interview (in Portuguese…) about autism (yes, it can be improved with vitamin D) and the benefits of raw green leaves in autoimmune diseases.
I am just going to share below the transcription of the video that talks about these benefits:
“Dr. Coimbra talks about the importance of methylpholate (present in large quantities in raw green leaves) in ‘silent’ diseases. A real class on epigenetics.
“At the beginning of the last decade, there was a great effort from a team of researchers at an international level to map and characterize the standard genes of the human species. The idea behind this effort was that if the normal genes of the human species were known to us, then we could study the genes of an individual who has a disease ‘x’, and if this individual has an alteration of a specific gene, which differs from the standard gene (of the human species), it would be known to us that the alteration of that specific gene would be the cause of the disease, and we could then develop therapeutic methods directed at the cause of the problem.
This actually brought results, several genes were identified, a set of genes was identified as causing the disease “x”, but there was a big surprise: it was verified that there were people who had the genetics of the disease “x”, but they went through their whole lives without having any manifestation of that disease. It was verified that there were identical twins – therefore they have exactly the same genetics – and both were carriers of the defective gene that causes disease “x” . One of them develops disease “x” and the other one spends his whole life without presenting any symptom of disease “x”. So, from that discovery, a science that today is known as epigenetics gained strength. “Epi” means “what is above”. Epigenetics means “that which is above genetics”, controlling genetics.
So, it is increasingly clear that we all have altered genes. Nobody has a perfect genetics. But our body is able to identify “dirty genes” and silence them, and the organism silences those genes by placing chemical groups adjacent to that gene (in the regions where they would bind with hormones and other substances), to keep these genes from binding, this way they can turn these genes “on” or “off”.
In other words, it’s as if the organism has the ability to tear strips of tape and place them on the mouth of the genes that are altered, to allow only genes that are normal to function. Who does this is a group of enzymes called DNA Methyltransferase – they transfer those methyl groups that I have compared to strips of tape on the mouth of the genes, finding the methyl they need in a donor substance (which for my example I’ll compare with a roll of tape). But this roll only has enough tape, it’s only kept full, if you have methylpholate in your diet.
So if you have a diet with the right doses of methylpholate, you can keep your roll of tape full.”
Our thanks to Yara Wanderlust for the transcription.
Cícero Galli Coimbra, neurologist, Ph.D.
Director of the Laboratory of Neuropathology & Neuroprotection of UNIFESP (Federal University of São Paulo); also associate professor in the same Institution
I finally did my MRI in June 25 2018, as requested by the Australian neurologist from a hospital in Brisbane. I don’t know if you remember, that back in 2017, this neurologist was laughing out loud in a complete disrespectful manner, when I showed her a letter from Dr Coimbra, written in 2013, stating that I was not going to have any future relapses or new lesions.
In disbelief, the neurologist said I was going to deal from then on with a nurse, and that I was to do a new MRI, since the last one they had was from 2013 (then I went to see Dr Coimbra in Brazil, he wrote that letter and the hospital never called me back until 2017).
So I saw this nurse some time ago, and told him that I was not willing to see this neurologsit again after all. He reassured me that after I did my MRI I could come back and see him again instead.
So the results of this MRI came out in July, and I have seen the nurse 2 weeks ago.
He literally gave me “thumbs up” and said that it was all stable, and that I should keep doing whatever I was doing, as it seemed to be working! After a short talk, he recommended me to see the neurologist again in 12 months. I asked him if there was another doctor available and there is one that deals only with MS, while the original one was more of a general neurologist.
I swapt doctors straight away, so in 12 months I should see this new neurologist from the public hospital.
Here is the copy of the MRI, I have underlined in green the main findings. I had people asking me about these results, sorry that it took a bit longer to post this, I have a busy off-line life out here. Thanks for understanding. Sorry for the bad definitoin of the image, if you click on the image, it should have a good reading quality.
MRi June 2018